User registration: fill-in the form

Please, fill-in the form below. Some of this information will be used to automatically fill-in the documents you will have to sign in the next step. Remember that only the group leader needs to do this.

1. Personal Information

1.1 Personal Information of the group leader (GL)

Your title (required).

Your given name (required).

Your family name (required).

Your position within the institution (required).

Use of an institutional email address issued by your place of work is part of our verification process. If you do not have one, enter your usual email address here, but please contact help@rd-connect.eu to explain your circumstances (required).

Your department within your institution (required).

If you have a link to your department profile, where your group is listed, please paste it here.
Url must start with http:// or https://




In two or three sentences, please describe your research interests and how access to the RDC-GPAP will be of benefit to you (required).


Please enter PubMed ID numbers for up to 3 recent relevant publications, separated by commas.

If you have an ORCID ID please paste the link to your profile here.
Url must start with http:// or https://


If you have a ResearchGate profile please paste the link here.
Url must start with http:// or https://


If you have a LinkedIn profile please paste the link here.
Url must start with http:// or https://



1.2 Personal Information of the legal representative
Legal representative's title (required).

Legal representative's given name (required).

Legal representative's family name (required).

Legal representative's position within the institution (required).

(required)

2. Institutional Information



The institution (university, hospital etc.) with which you have your primary affiliation (required).

If there is an acronym for your institution, please provide it here.

Your institution's main website (required)
Url must start with http:// or https://


The nature of your institution (required).

Provide the institution's tax number (required).

The country of your institution's head office (required).

The city of your institution's head office (required).

The address of your institution's Head Office
If your country is a non-EU country and does not have an adequate level of data protection (see here ) we will contact you by email to also fill in and sign the Data Transfer Agreement and the Data Access Agreement (required).




RD-Connect only accepts human data from rare disease patients and family members.

If your application is approved, you will be able to access and analyse all data submitted by your group and you will also have access to data submitted by other groups.

Please tick the box below if you are NOT planning to submit data to the platform



Your group members

Adding other users to your group

You may add members of your group that you would like to have access here.

They are not required to complete this registration process. By completing this as their project lead, you are vouching for their use of the RDC-GPAP.

Enter one member per line.

Please enter their first and last names and institutional email address, all on the same line, separated with single spaces.




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